iTransition - Patient Centered Care
Studio Sponsor: Cincinnati Children’s Hospital, Lori E. Crosby, PsyD
The goal of this project was to explore patient-provider tools to improve the transition from pediatric to adult care in sickle cell disease. Collaborating with Cincinnati Children’s Hospital Medical Center (CCHMC), this project enabled the clinical team to obtain hands-on experience implementing Live Well Collaborative’s design thinking model via their participation. The LWC and CCHMC teams used a co-invention approach to develop ways to improve the transition process together
Live Well Collaborative Core Team: Ashley Walton, Ricardo Elizondo, Alix Wolfe, Rachel Lee
How can we improve the transition from pediatric to adult care for youth with sickle cell disease?
Sickle cell is a genetic blood disorder, which causes red blood cells to take abnormal shape, creating various complications to the body. It is a complicated disorder because it affects each individual very differently. The transition from adolescent to adult care for these patients also occurs at time when these youth are making many other life changes such as going to college, applying for jobs, or starting a family.
Our team focused on understanding the transition process, stakeholder involvement with sickle cell patients, and learning how the disease affects a person’s life and body. We identified opportunities areas through interviews conducted at Cincinnati Children’s Hospital and the adult clinic. Our research was used to create visualizations identifying common themes across patients leading to potential areas for improvement.
Communicating the Process
Created visualizations of how sickle cell disease affects the body and level of involvement in care among various stakeholders to share with the clinic team.
We conducted an ideation session with the clinic team – using a method of adding, subtracting and dividing steps of the transition process in order to identify potential benefits of reorganizing the steps.
Identifying opportunity areas
Through a co-creation approach, our teams developed three main concepts to improve the transition:
1. The transition process should be standardized but flexible enough to meet individual patient needs
2. Patients and providers
need a shared vision around transition and a way to communicate throughout
3. Patients needs a way to
tie transition goals to more general developmental milestones, as they did not
see the connection healthcare management tasks.
Care providers can arrange the deck of cards to design and visualize a personalized
transition process for each patient.
Patient booklets provide hospital staff with a 'snapshot' of each patients' daily life,
attitudes towards transition, individual SCD effects on the body, pain management, and support system.
A way for patients to interact with the transition process in a simple and focused way, receiving feedback on their achievements.