iTransition - Patient Centered Care

Studio Sponsor: Cincinnati Children’s Hospital, Lori E. Crosby, PsyD

The goal of this project was to explore patient-provider tools to improve the transition from pediatric to adult care in sickle cell disease. Collaborating with Cincinnati Children’s Hospital Medical Center (CCHMC), this project enabled the clinical team to obtain hands-on experience implementing Live Well Collaborative’s design thinking model via their participation. The LWC and CCHMC teams used a co-invention approach to develop ways to improve the transition process together 

Live Well Collaborative Core Team: Ashley Walton, Ricardo Elizondo, Alix Wolfe, Rachel Lee


CORE QUESTION

How can we improve the transition from pediatric to adult care for youth with sickle cell disease? 


The Challenge

Sickle cell is a genetic blood disorder, which causes red blood cells to take abnormal shape, creating various complications to the body. It is a complicated disorder because it affects each individual very differently. The transition from adolescent to adult care for these patients also occurs at time when these youth are making many other life changes such as going to college, applying for jobs, or starting a family. 


tHE APPROACH

Our team focused on understanding the transition process, stakeholder involvement with sickle cell patients, and learning how the disease affects a person’s life and body. We identified opportunities areas through interviews conducted at Cincinnati Children’s Hospital and the adult clinic. Our research was used to create visualizations identifying common themes across patients leading to potential areas for improvement. 


Communicating the Process

Created visualizations of how sickle cell disease affects the body and level of involvement in care among various stakeholders to share with the clinic team. 


Process ideation

We conducted an ideation session with the clinic team – using a method of adding, subtracting and dividing  steps of the transition process in order to  identify potential benefits of reorganizing the steps.

Example: Moving ‘Patient tracked for one year’ to the beginning of the process, allows information to be used to personalize the transition process early on. 


Example: Moving ‘Patient tracked for one year’ to the beginning of the process, allows information to be used to personalize the transition process early on. 


Identifying opportunity areas

Through a co-creation approach, our  teams developed three main concepts to improve the transition:

1. The transition process should be standardized but flexible enough to meet individual patient needs

2. Patients and providers
need a shared vision around transition and a way to communicate through
out
the process

3. Patients needs a way to
tie transition goals to more general developmental milestones, as they did not
see the connection healthcare management tasks.


Provider Interface

Care providers can arrange the deck of cards to design and visualize a personalized
transition process for each patient.

Transition step cards represent the current sequence of events they have to go through before they transfer.

Transition step cards represent the current sequence of events they have to go through before they transfer.

Milestone cards represent goals in different areas surrounding the patient's life. 

Milestone cards represent goals in different areas surrounding the patient's life. 

Power-up cards represent current or new interventions that could benefit a particular patient depending on their personalized process.

Power-up cards represent current or new interventions that could benefit a particular patient depending on their personalized process.

Blank cards are used to sketch out individual scenarios, which are then discussed and evaluated.


Blank cards are used to sketch out individual scenarios, which are then discussed and evaluated.


Patient Booklets

Patient booklets provide hospital staff with a 'snapshot' of each patients' daily life,
attitudes towards transition, individual SCD effects on the body, pain management, and support system. 


Patient Interface

A way for patients to interact with the transition process in a simple and focused way, receiving feedback on their achievements.